Lately more and more people have been asking about doing BD through J-tubes. Being true to my original philosophy of this being a place where I try and collate stuff and try to sum up the thoughts flying around out there, here's what I've heard (and thought) on the subject. (Remember, nothing here - or anywhere - is gospel truth. It is opinion, and even things we call fact are opinion. Everyone once knew for sure that the earth was the centre of the universe, right?)
BD through a J-tube can certainly be done, but as with all things, not necessarily by everyone.
I can't eat orally, or indeed swallow at all, and quite a while back I was very interested in questions around whether I was missing out on some vital part of digestion by lack of saliva getting on down there. Turns out, not really. A little more recently, much has been discussed about PPIs (proton pump inhibitors - medicines like Prevacid and Nexium) and their possible effect on digestion by changing the acidity of the stomach. The jury's out on that. This was around the same time as a nutritionist enlightened me to the school of thought about not consuming water while you eat (or feed) because it dilutes the stomach secretions - acids and enzymes mostly. I got to thinking, and asking, and what I wanted to know was: what are these secretions like saliva, stomach enzymes and acids actually doing to the food we ingest?
Turns out, they're essentially doing what my Vitamix does. Saliva is to help the food be chewed and go down the esophagus. The enzymes are like little keys that 'unlock' proteins and other components into smaller molecules, and the acids attack larger clumps of chewed-up stuff and turn it into a more liquidy substance that the intestines can deal with more easily. Now the Vitamix doesn't quite do the whole job the enzymes do, but I'd say it gets you about halfway there. A high-powered blender with blunt blades like the Blendtec or the Vitamix not only liquidizes food far better than your jaw muscles, tongue, teeth and stomach acids can, but smashes apart cell walls of both animal and vegetable tissue to release nutrients locked inside those cells. Cooking can do a similar thing, but often destroys much of the nutrients in the process. Enzymes do this work in our stomachs.
So here's my hypothesis: That may blends made in a high-powered, high-speed blender are probably pre-digested enough to be fed into a J-tube, with possibly a better chance of success the higher (ie towards or in the duodenum) the J is placed.
If it were me, there would be some things I'd steer away from, mainly things that need our stomach acids to neutralise or curdle. Dairy, fish, shellfish, chocolate, tomatoes and maybe broccoli and potato too. Then again, it's entirely possible that all these would do just fine.
People are a little more nervous of J-tubes for other reasons too. They sometimes have no internal retainer (in the case of separately sited J-tubes, as opposed to GJs) so are more prone to slippage, leakage and anecdotally anyway to infection. I'm willing to bet they're a bit more uncomfortable to have than a G-tube - anyone? And their ends just dangle there inside, and so you can never be 100% sure exactly where they are. But really, I think these are not cause to be any more nervous about what food you put down there.
There are not very many people doing J-tube feeds with BD right now. More are coming to light though, and as I discover more personal examples, I can add them in here. I really don't see any risk in trying a basic, easy-to-digest blend, preferably of vegetable substances (veges, fruits, grains) first that are known to be tolerated, and going as one would for an infant eating for the first time; add one new ingredient at a time, and go slowly.
If I had a J-tube, I'd give it a go. But that's the thing isn't it? I could also just jump in to BD with my g-tube because if anything 'went wrong', I knew I would deal with it, it was my body, I could feel things - not like a watchful, nervous parent or carer. That's harder, no doubt. Still, there are people that do it, and doctors that say there's no reason you couldn't. The human body is after all amazingly adaptable, and we were built for food.
Food for thought! It's worth remembering that medicine is a very conservative institution. The status quo is 'safe', and of course patient safety (and doctor's safety too of course) is paramount. There are no incentives to question the things they've always been trained to say no to. Some doctors say go for it, give it a try, can't hurt. Others say no, no way, never. We only discover through trying. But it's you who must decide whether to try or not.
I think the biggest thing J-tubers should consider before trying a blenderized diet is why do they have the J-tube. If it's due to motility issues, a lack of a GI tract, malabsorption, eosinophilic disorders or other disorders related to an inability to properly process the food in the GI tract, I would highly caution these people from trying blenderized food. If you can't tolerate the food orally, how is infusing the food farther down your GI tract going to be any different?
ReplyDeleteFor me, I cannot tolerate real food orally due to gastric/intestinal/colonic dysmotility, CIPO, malabsorption and EGID. Attempting a blenderized diet has been suicide for me. I tried very diluted rice cereal and also very diluted baby food purees through my J-tube. End result: spending several weeks in the hospital due to severe vomiting, pain and bowel obstructions. I would LOVE to "eat" real food. Unfortunately, this isn't an option for me. In fact, my GI tract has continued to fail and no longer tolerates formula or oral liquids. I'm now on IV hydration and TPN.
We have been using a modified blender diet in the jtube for about a year now. Mostly-pureed veggies, juice, baby cereal, and some pureed meat with a banana, blueberries, protein powder, and a little yogurt. We only use this twice a day-about a cup at a time-spread out over about an hour. The rest of the time we tube feed normally. Our guys health has improved and he has gained weight. Before starting this-when he was only on Jevity 1.5-we were told that he was dying of malnutrition-and nothing could be done. Since then his iron and protein levels have come up to almost normal. Drs kept saying-"he's getting all the nutrition he needs through the tube feed-nothing more can be done". So we did this without Dr. approval-but you can't argue with success
ReplyDeleteI asked about real food to the j for my son and was told it probably wouldn't work. I figured the exact same thing as what was mentioned: that my blender was smashing the hell out of those cell walls and liquifying the food so why not. Honestly, I could not imagine putting processed food into my kid's j - no offense to those that do. But fruits and veggies are so easily digested I couldn't think of any reason why he should tolerate reconstituted formula and not those. I do the main blends to his g and those are usually a little heartier and thicker and to the j I will do fruits or squash with added juice and oatmeal or rice cereal. It is pretty thin liquid and it is supplemental to his formula right now, but he is tolerating it just fine. He does not have motility issues, but he does have a roux-en-y, which places the j a bit lower down the tract. We are working on getting him over to a diet of all real food. I honestly am not mentally capable right now of adding worry about figuring calories so right now they are just bonuses.
ReplyDeleteMy father has had a jtube for a year now and has been losing weight. I'm really interested on trying a natural approach but am scared that it will make matters worst. I have been reading extensively online and this is the first web site I found that someone is feeding blended foods thru a jtube. That gives us hope! A while back the doctor was asked if he could be fed with natural goods and he said that it wasn't possible. My father's reason to having a jtube was due to throat cancer. I will bring it up to the doctor again and maybe meanwhile give home fish oil thru the tube. I appreciate this website and the people whom comment on here, it does make a difference and gives hope for us all! I wish all a good recovery!
ReplyDeleteHi Erica - did you have any success using blended food with your father's J tube? Thanks, Georgina
DeleteI'm experimenting with my j-tube. I'm a throat cancer survivor; radiation treatment damaged my ability to swallow. I've had a tube for over three years and specifically a j-tube for a year and a half.
ReplyDeleteFor the past few weeks, in addition to my regular feed of 2-cal, I've been adding a blend of fruit, a bit a yogurt and some soy milk. My wife blends up a batch every day for herself; I've been taking a half a cup of what she drinks and mixing it with another half cup of water.
My main question is the speed of delivery. I'm a big guy and so have large small intestine. My 2-cal speed is 120 ml/hour. I have no problem doing water bolus of 60 ml quickly, in about 10 seconds. I've been trying 60 ml of the fruit/soy/yoghurt blend quickly as well. No problem so far. I'm wondering if I can successfully deliver my 2-cal at higher speeds as well.
Great to hear you are able to get some real food in! I think the rate thing is going to be different for everyone. All I can say is try and see. Best of luck!
DeleteI so love reading this conversation! I have a five year old with a GJ and I am dying to trial him on BD! Thank you so much for sharing this inspiring conversation with the world! You may have just changed someone's life!!!
ReplyDeletevickilynnpurdy@mchsi.com
my little one has been doing the bd through his J(he has a gj tube) for about 2 years now. His GI described things basically like you did in this post. The high speed blenders are doing what your stomach acids would be doing. She said if the food is blended to the point where you can run it through the feeding pump then it is broken down enough to be given through the J. She did tell us to avoid red meats as they are more difficult on the system but aside from that we give most anything in his J. I even discussed adding digestion enzymes and was told they aren't needed. Switching to the bd was the best decision possible for my little guy. Great post.
ReplyDeleteHi Junior - can you say what size the J tube is please? Georgina
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