tag:blogger.com,1999:blog-4606364322703912636.post7997933870123135826..comments2023-10-12T19:09:00.416+08:00Comments on You start with a tube...: The Results: and I Would Like Your Ideas PleaseAadhaarhttp://www.blogger.com/profile/13487059113264287774noreply@blogger.comBlogger10125tag:blogger.com,1999:blog-4606364322703912636.post-45702496515775959842021-11-14T07:57:13.508+08:002021-11-14T07:57:13.508+08:00Great blog you haveeGreat blog you haveeIsaachttps://www.isaacweber.com/noreply@blogger.comtag:blogger.com,1999:blog-4606364322703912636.post-8546578474337702102011-01-13T12:47:16.925+08:002011-01-13T12:47:16.925+08:00Objections: that's too hard. How do you know ...Objections: that's too hard. How do you know what she is getting? How do you measure it?<br /><br />Improvements: I am rather proud to say she has never had a can of enteral formula. She moved straight from human milk to BD...against the advice of several...although now that we know of her allergies to corn and soy, I am even more grateful we have taken this route as there is not one single artificial human food which is not derived from those things.<br /><br />Problems: food splatters in weird places. A little finagling while traveling. Regular moving bowels;-)Karinhttps://www.blogger.com/profile/06296227080039958245noreply@blogger.comtag:blogger.com,1999:blog-4606364322703912636.post-51588158798961189802010-12-02T05:46:35.869+08:002010-12-02T05:46:35.869+08:00Objections: The dietician has said "it is not...Objections: The dietician has said "it is not Best Practice" ... I suppose that is to do with hospital policy. Another person, sorry cannot remember who, said it was "old fashioned" - referring to the fact that this is how they used to feed people with a tube before the enteral formulas were produced. Another person was worried for us, thinking about the extra hassle they imagine for us. Most people think it sounds like a great idea though!<br /><br />Improvements: haven't switched over to full blended diet, but, when Josh is having blended food he shows much more interest in trying to swallow. (was/is unable to swallow well, from birth)<br /><br />Problems: haven't noticed any so far, but, Josh has tolerated the ordinary enteral formula ok i think, transitioning fully to that from expressed breastmilk at age two years.Johttps://www.blogger.com/profile/16736536343177001015noreply@blogger.comtag:blogger.com,1999:blog-4606364322703912636.post-76173640968726583662010-11-30T09:25:10.766+08:002010-11-30T09:25:10.766+08:00No doctor ever objected. Nor nurses during hospita...No doctor ever objected. Nor nurses during hospital stays or dieticians or hospital kitchen supervisors or...I guess I must seem so sure of myself and my convictions or I've handpicked a great team of medical care providers for Jacob. So far everyone has been very supportive.<br /><br />Improvements would mostly be in Jacob's skin and hair, complexion, overall health and ability to fight bugs. <br /><br />Problems: None really, aside from finding splatters in strange places. The only permanent clog we've had so far has been from Jacob's prevacid, not from his food.Julie Honeymannoreply@blogger.comtag:blogger.com,1999:blog-4606364322703912636.post-30608121090666053102010-11-30T08:59:19.749+08:002010-11-30T08:59:19.749+08:00Objections: Why do you want to do it? She's ...Objections: Why do you want to do it? She's (my mom)not going to get all of the nutrients she needs. Never mind that she was in a nursing home for two months with no food or other feedings at all.<br /><br />Improvements: Overall better health...stronger, better color in her face, all of the hair she lost grew back, more stamina.<br /><br />Problems: Four days a week, I have to feed mom before we leave for day care and my job and then again when we return home, plus a before bedtime snack; on Fri, Sat, Sun, I give her all her meals. It is very time consuming and the tube gets clogged easily if I don't blend really well. For me, it's worth it, because she looks so much better.Linda Morales-Kennonnoreply@blogger.comtag:blogger.com,1999:blog-4606364322703912636.post-19543416167900269132010-11-30T08:29:29.278+08:002010-11-30T08:29:29.278+08:00Objections: "wouldn't formula be easier?&...Objections: "wouldn't formula be easier?" "elemental formula is the only way we know he'll absorb the nutrients" (never mind the fact that he couldn't stop throwing up to absorb the formula)<br /><br />Improvements: vomiting decreased then altogether stopped, he went from crying during feedings to clutching, hugging and asking for more syringes. :), able to increase calories by 500/day, more energy and better looking stool, absolved respiratory problems (retrospect these were caused by reflux, food allergies, or more likely both)<br /><br />Problems: appears more time consuming (until you think about the clothes washing, carpet cleaning, and stress of vomiting multiple x's/day) so actually not a real problemJoleanna Barenoreply@blogger.comtag:blogger.com,1999:blog-4606364322703912636.post-80834604383557937232010-11-30T05:46:10.723+08:002010-11-30T05:46:10.723+08:00Objections: Not enough calories, Won't know w...Objections: Not enough calories, Won't know what she's getting, not enough nutrients, too much work<br /><br />Improvements: Volume tollerance, rate tollerance, constipation, vommitting, interest in food<br /><br />Problems: Can't use kangaroo pump, more challenging for vacations, initial weight lossHeidihttp://heidi-french.blogspot.comnoreply@blogger.comtag:blogger.com,1999:blog-4606364322703912636.post-12305706420867452792010-11-30T00:31:59.492+08:002010-11-30T00:31:59.492+08:00Objections from medical community: will be too muc...Objections from medical community: will be too much work, unsanitary and can clog tube, also difficult to measure calories and deliver complete nutrition. An almost exact quote was, "Why would you switch to real food when everything you need is in a can?"<br /><br />Issues: To be somewhat delicate, we can refer to it as my daughter's "voiding" issues. One formula she was on made her constipated and we had to supplement her diet with a daily dose of Miralax ... and finding just the right dosage was a bit of trial and error. These issues also caused toilet training problems ... we even had several sessions with a behavioral psychologist to get her past it. Switching formulas (from Nutren Jr. to Compleat Pediatric) now caused the opposite issue ... loose stools and gas!<br />Also, despite "everything" being in that can, I don't believe all the vitamins were in a form my daughter's body could utilize, thus she was always pale and a blood test showed she was anemic.<br /><br />Improvements: I immediately saw improvement in my daughter's skin tone ... she finally had color in her cheeks! And I'm awaiting the results of an iron-binding study to see if her iron levels have improved. And I'm happy to report that I flushed the rest of the Miralax down the drain and no longer give her Prevacid because I no longer feed her overnight in a horizontal position. She's doing great!<br /><br />Leslie, mom to Tinka, 7 years oldLeslie Gaffneynoreply@blogger.comtag:blogger.com,1999:blog-4606364322703912636.post-28993457727902397072010-11-29T23:29:57.335+08:002010-11-29T23:29:57.335+08:00Objections:
Moving from all breastmilk to a real ...Objections: <br />Moving from all breastmilk to a real food diet/BD will leave my son lacking protein and other key nutrients so I should replace some of my breastmilk with formula while I am switching to a totally food diet (what do other breast feeding moms do in the switch?? It just makes me crazy the things this dietitian came up with)<br /><br />the surgeon gave me a lecture about how I shouldn't be putting anything but formula through a g-button becuase it will clog it and cause all sorts of problems. (He also said we have the best looking g-button stoma site he has ever seen) <br /><br />Improvements and problems: I have never fed my 21 month old anything but breastmilk or real food BD, (he gets locally grown and/or organic food with milk and meat from animals in our area and has a close to perfect diet becuase he can't taste it) so I don't have any before and after comparisons. I may hazard to say that he had some possible reflux issues and volume on breastmilk and has not seemed to have any with the BD.Emilyhttps://www.blogger.com/profile/01672984062670853566noreply@blogger.comtag:blogger.com,1999:blog-4606364322703912636.post-7927061106743504322010-11-29T20:51:49.303+08:002010-11-29T20:51:49.303+08:00Objections: Sanitation (going to make him sick),...Objections: Sanitation (going to make him sick), too much work, won't know if he's getting all his nutrition, going to clog the tube, going to make him worse/sicker, if he can't digest elemental formula he can't digest food.<br /><br />Improvements: Energy, vomiting, reflux, comfort, rate tolerance (bolus instead of continuous), health, growth, interest in food/eating.<br /><br />Problems: Constipation, sleep issues.Cathynoreply@blogger.com